Children diagnosed with Otahara Syndrome

This page shows specific information regarding Otahara Syndrome. There are 3 areas of information: children who are/have been treated for Otahara Syndrome, statistical information regarding the treatments for Otahara Syndrome and links to other sites specifically for Otahara Syndrome.

List of Children

Name

Date of Birth

Last Updated

Ana Paola

4/10/2006

10/20/2007

Lena

6/11/2004

7/11/2005

Haley Q.

11/20/2001

7/11/2002

Celeste

1/6/2000

1/24/2001

Sebastian

4/10/1997

2/8/2003

Tyler R

12/6/1994

10/18/2013

Austin

2/12/1993

3/11/2004


For information on how these statistics are calculated, please see the disclaimer

Effectiveness for this diagnosis

Treatment

AKA

Total

Pos.

Neut.

Neg.

Unkn.

CarbamazepineTegretol, Carbatrol4

0%

75%

25%

0%

Chiropractic adjustments2

0%

50%

50%

0%

ClobazamFrisium2

0%

100%

0%

0%

ClonazepamKlonopin, Rivotril4

0%

25%

50%

25%

ClorazepateTranxene2

50%

0%

0%

50%

CorticotropinACTH5

0%

20%

40%

40%

DiazepamValium3

100%

0%

0%

0%

DivalproexDepakote, Depakote Sprinkles, Epilim1

100%

0%

0%

0%

FelbamateFelbatol2

0%

50%

50%

0%

GabapentinNeurontin1

0%

0%

100%

0%

IVIGIntravenous immune gamma globulin1

0%

100%

0%

0%

Ketogenic Diet3

33%

0%

67%

0%

LamotrigineLamictal2

0%

0%

100%

0%

LevetiracetamKeppra2

50%

0%

50%

0%

LorazepamAtivan3

67%

33%

0%

0%

Nitrazepam2

50%

0%

0%

50%

OxcarbazepineTrileptal1

100%

0%

0%

0%

Phenobarbital6

0%

17%

83%

0%

PhenytoinDilantin3

33%

33%

33%

0%

Prednisone1

0%

0%

100%

0%

PrimidoneMysoline1

0%

0%

100%

0%

PyridoxineVitamin B65

0%

40%

60%

0%

TopiramateTopamax4

0%

75%

0%

25%

Vagal Nerve StimulatorImplant to stimulate Vagal Nerve1

0%

0%

0%

100%

Valproic AcidDepakene, Epival, Sodium Valproate, Orfi4

0%

50%

25%

25%

VigabatrinSabril4

25%

50%

25%

0%

ZonisamideZonegran3

33%

0%

67%

0%


If you know of additional links you would like to see listed here, please email me.

Other Links for this diagnosis

Description

Yahoo Group dedicated to Ohtahara Syndrome