Children diagnosed with Otahara Syndrome

This page shows specific information regarding Otahara Syndrome. There are 3 areas of information: children who are/have been treated for Otahara Syndrome, statistical information regarding the treatments for Otahara Syndrome and links to other sites specifically for Otahara Syndrome.

List of Children
Name	Date of Birth	Last Updated
Ana Paola	4/10/2006	10/20/2007
Lena	6/11/2004	7/11/2005
Haley Q.	11/20/2001	7/11/2002
Celeste	1/6/2000	1/24/2001
Sebastian	4/10/1997	2/8/2003
Tyler R	12/6/1994	11/16/2009
Austin	2/12/1993	3/11/2004

For information on how these statistics are calculated, please see the disclaimer

Effectiveness for this diagnosis
Treatment	AKA	Total	Pos.	Neut.	Neg.	Unkn.
Carbamazepine	Tegretol, Carbatrol	4	0%	75%	25%	0%
Chiropractic adjustments		2	0%	50%	50%	0%
Clobazam	Frisium	2	0%	100%	0%	0%
Clonazepam	Klonopin, Rivotril	4	0%	25%	50%	25%
Clorazepate	Tranxene	2	50%	0%	0%	50%
Corticotropin	ACTH	5	0%	20%	40%	40%
Diazepam	Valium	3	67%	0%	33%	0%
Divalproex	Depakote, Depakote Sprinkles, Epilim	1	100%	0%	0%	0%
Felbamate	Felbatol	1	0%	100%	0%	0%
Gabapentin	Neurontin	1	0%	0%	100%	0%
Ketogenic Diet		3	33%	0%	67%	0%
Lamotrigine	Lamictal	2	0%	0%	100%	0%
Levetiracetam	Keppra	2	50%	0%	50%	0%
Lorazepam	Ativan	3	67%	33%	0%	0%
Nitrazepam		2	50%	0%	0%	50%
Oxcarbazepine	Trileptal	1	100%	0%	0%	0%
Phenobarbital		6	0%	17%	83%	0%
Phenytoin	Dilantin	3	33%	33%	33%	0%
Prednisone		1	0%	0%	100%	0%
Primidone	Mysoline	1	0%	0%	100%	0%
Pyridoxine	Vitamin B6	4	0%	50%	50%	0%
Topiramate	Topamax	4	0%	75%	0%	25%
Vagal Nerve Stimulator	Implant to stimulate Vagal Nerve	1	0%	0%	0%	100%
Valproic Acid	Depakene, Epival, Sodium Valproate, Orfi	4	0%	50%	25%	25%
Vigabatrin	Sabril	4	25%	50%	25%	0%
Zonisamide	Zonegran	3	33%	0%	67%	0%

If you know of additional links you would like to see listed here, please email me.

Other Links for this diagnosis
Description
Yahoo Group dedicated to Ohtahara Syndrome