Children diagnosed with Dravet's Syndrome

This page shows specific information regarding Dravet's Syndrome. There are 3 areas of information: children who are/have been treated for Dravet's Syndrome, statistical information regarding the treatments for Dravet's Syndrome and links to other sites specifically for Dravet's Syndrome.

List of Children

Name

Date of Birth

Last Updated

Aiden

11/11/2005

2/26/2009

Carter

7/12/2005

10/21/2007

Julia

4/10/2004

5/5/2009

Joseph

8/13/2002

6/3/2007

Sydney Nelson

4/1/2001

7/7/2007

Laura W.

11/27/1999

2/1/2009

Jarod

8/1/1998

11/2/2008

Teigan

4/23/1998

2/12/2007

Ylva

2/2/1990

2/4/2006


For information on how these statistics are calculated, please see the disclaimer

Effectiveness for this diagnosis

Treatment

AKA

Total

Pos.

Neut.

Neg.

Unkn.

AcetazolamideDiamox1

100%

0%

0%

0%

Atkins DietModified Atkins Diet1

0%

0%

100%

0%

CarbamazepineTegretol, Carbatrol5

0%

20%

80%

0%

Chiropractic adjustments2

50%

50%

0%

0%

ClobazamFrisium7

43%

29%

14%

14%

ClonazepamKlonopin, Rivotril6

67%

33%

0%

0%

Cranial OsteopathyCranio Sacral Manipulation1

100%

0%

0%

0%

DiazepamValium7

71%

14%

14%

0%

DivalproexDepakote, Depakote Sprinkles, Epilim2

0%

0%

0%

100%

EthosuximideZarontin3

100%

0%

0%

0%

FelbamateFelbatol2

50%

0%

0%

50%

GabapentinNeurontin1

0%

100%

0%

0%

Homeopathy2

50%

0%

0%

50%

IVIGIntravenous immune gamma globulin1

100%

0%

0%

0%

Ketogenic Diet4

25%

75%

0%

0%

LamotrigineLamictal8

0%

25%

75%

0%

LevetiracetamKeppra5

40%

20%

20%

20%

LorazepamAtivan3

67%

33%

0%

0%

Multi vitamins3

67%

0%

0%

33%

NeurofeedbackNeurotherapy1

0%

100%

0%

0%

OxcarbazepineTrileptal1

0%

0%

100%

0%

Paraldehyde1

100%

0%

0%

0%

Phenobarbital2

0%

100%

0%

0%

PhenytoinDilantin4

25%

0%

50%

25%

Prednisolone1

100%

0%

0%

0%

PyridoxineVitamin B62

0%

50%

0%

50%

TopiramateTopamax6

67%

33%

0%

0%

Vagal Nerve StimulatorImplant to stimulate Vagal Nerve3

33%

33%

0%

33%

Valproic AcidDepakene, Epival, Sodium Valproate, Orfi6

17%

33%

33%

17%

VigabatrinSabril1

0%

0%

100%

0%

ZonisamideZonegran1

100%

0%

0%

0%


If you know of additional links you would like to see listed here, please email me.

Other Links for this diagnosis

Description

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