Children diagnosed with Doose Syndrome

This page shows specific information regarding Doose Syndrome. There are 3 areas of information: children who are/have been treated for Doose Syndrome, statistical information regarding the treatments for Doose Syndrome and links to other sites specifically for Doose Syndrome.

List of Children

Name

Date of Birth

Last Updated

Luke Samuel Hutchinson

6/6/2001

3/19/2005

Noah Precourt

2/16/2001

3/18/2005

Taylor

9/17/1997

1/24/2010

Lynden

6/4/1997

1/24/2003

Michael

5/22/1997

6/20/2006


For information on how these statistics are calculated, please see the disclaimer

Effectiveness for this diagnosis

Treatment

AKA

Total

Pos.

Neut.

Neg.

Unkn.

AcetazolamideDiamox1

100%

0%

0%

0%

CarbamazepineTegretol, Carbatrol2

0%

50%

50%

0%

Chiropractic adjustments1

100%

0%

0%

0%

ClobazamFrisium1

0%

100%

0%

0%

ClonazepamKlonopin, Rivotril3

67%

0%

33%

0%

DiazepamValium1

100%

0%

0%

0%

DivalproexDepakote, Depakote Sprinkles, Epilim3

33%

0%

67%

0%

FelbamateFelbatol1

100%

0%

0%

0%

IVIGIntravenous immune gamma globulin1

100%

0%

0%

0%

Ketogenic Diet4

100%

0%

0%

0%

LamotrigineLamictal3

33%

0%

33%

33%

LevetiracetamKeppra5

60%

20%

0%

20%

LorazepamAtivan1

100%

0%

0%

0%

MethsuximideCelontin1

0%

0%

0%

100%

OxcarbazepineTrileptal2

0%

50%

50%

0%

Phenobarbital1

0%

100%

0%

0%

PhenytoinDilantin2

0%

50%

50%

0%

TopiramateTopamax3

0%

67%

33%

0%

Vagal Nerve StimulatorImplant to stimulate Vagal Nerve2

0%

50%

0%

50%

Valproic AcidDepakene, Epival, Sodium Valproate, Orfi1

0%

100%

0%

0%

ZonisamideZonegran2

50%

0%

0%

50%


If you know of additional links you would like to see listed here, please email me.

Other Links for this diagnosis

Description

Doose Syndrome Support website