Children diagnosed with Lennox-Gastaut Syndrome

This page shows specific information regarding Lennox-Gastaut Syndrome. There are 3 areas of information: children who are/have been treated for Lennox-Gastaut Syndrome, statistical information regarding the treatments for Lennox-Gastaut Syndrome and links to other sites specifically for Lennox-Gastaut Syndrome.

List of Children

Name

Date of Birth

Last Updated

Sierra

8/6/2020

8/26/2005

Kali

6/22/2006

5/28/2010

Rebecca Kaylene

6/17/2005

4/28/2010

Finnian James Cataldo

1/27/2005

5/13/2010

Joseph

6/10/2003

7/24/2009

Magda

6/1/2003

6/11/2007

Calem

5/29/2003

6/2/2006

Jenelle Frances

10/22/2002

10/25/2007

Wade

1/1/2002

2/28/2007

Danny J.

10/24/2001

1/4/2004

Julia

5/20/2001

11/25/2007

Hayven Blue Rae

2/17/2001

11/20/2005

Slava

7/7/2000

2/20/2010

Matthew K.

6/21/2000

12/14/2008

Erika

5/25/2000

4/7/2006

Alex

12/8/1999

10/18/2007

Jaylin Danae Barnett

9/17/1999

7/11/2002

Matthew Hall

7/13/1999

3/10/2006

Tanner Mortenson

5/27/1999

4/7/2006

Demarius (scrappy)

2/16/1999

5/23/2010

Demarius (Scrappy)

2/16/1999

5/19/2010

Alex

1/27/1999

7/21/2007

Mykel

3/2/1998

10/10/2002

Callum Stuart

9/17/1997

6/26/2002

Callum Houston

9/17/1997

5/7/2004

Nyree Sage Ameen

8/21/1997

3/22/2004

Graison

8/17/1997

9/20/2003

Jacob P

7/13/1997

12/17/2002

Richard L

5/24/1997

2/16/2000

Alex

2/6/1997

6/25/2003

Mike

1/23/1997

11/23/2002

Briana

11/20/1996

9/11/2003

Shawn N

7/4/1996

1/24/2001

Angel

10/12/1995

10/21/2000

ANGEL MAE SAPIA

10/12/1995

2/9/2003

Angel Sapia

10/12/1995

1/11/2003

Austin L

10/11/1995

8/13/2001

Rick B.

8/6/1995

11/16/1998

Maggie Davis

5/25/1995

4/4/2005

Lucia

3/14/1995

2/29/2000

Brandon

2/17/1995

11/11/1997

Walid

9/1/1994

1/19/2000

CD

7/10/1994

8/25/1998

Jakey

6/14/1994

7/4/2000

Luke

1/11/1994

12/2/2008

Joshua Amiel Harriman

12/14/1993

10/9/1998

Morgan B.

10/21/1993

10/11/2000

Morgan Nicole Ray

10/6/1993

7/3/2009

Marco

6/22/1993

11/18/2003

Korry S.

6/3/1993

2/17/2002

Korry S.

6/3/1993

2/9/2002

Savannah S

4/25/1993

9/17/1998

Thomas U

2/15/1993

1/12/1998

Nicola Packard

11/4/1992

11/24/1999

Jonathan A.T. Wong

10/8/1992

7/16/1999

Teylor

8/24/1992

2/26/1999

Ken L. D. M.

2/20/1992

5/2/1999

Michael E

9/8/1991

3/24/2002

Jacob Samuel

6/10/1991

10/13/1997

Tara

4/15/1991

2/13/1998

Arlyn

2/14/1991

11/15/2004

sara

1/1/1991

10/20/2004

Joyanna

10/30/1990

1/22/2003

Robinmarie W.

10/16/1990

11/15/2003

Sally

6/23/1989

4/6/1998

Amanda Lee

5/12/1989

10/1/1997

Jessica Amber

1/1/1989

3/25/2006

Janina

1/1/1989

3/4/2002

Shaun

7/4/1987

4/8/1999

Jacob C

3/23/1986

5/21/2000

Corrina

12/26/1985

4/6/1998

Yohance

2/5/1985

7/4/2003

Oliver Dynes

10/30/1982

1/12/1998

Joseph F

3/24/1981

5/17/2009


For information on how these statistics are calculated, please see the disclaimer

Effectiveness for this diagnosis

Treatment

AKA

Total

Pos.

Neut.

Neg.

Unkn.

AcetazolamideDiamox6

33%

0%

17%

50%

CarbamazepineTegretol, Carbatrol23

13%

13%

61%

13%

Chiropractic adjustments3

67%

0%

33%

0%

ClobazamFrisium10

30%

30%

20%

20%

ClonazepamKlonopin, Rivotril30

33%

43%

10%

13%

ClorazepateTranxene3

100%

0%

0%

0%

Contraceptive pill1

100%

0%

0%

0%

Corpus CallostomyDisconnect two hemispheres2

100%

0%

0%

0%

CorticotropinACTH14

50%

29%

14%

7%

DiazepamValium11

45%

0%

27%

27%

DivalproexDepakote, Depakote Sprinkles, Epilim29

31%

14%

34%

21%

EthosuximideZarontin13

46%

15%

31%

8%

FelbamateFelbatol14

57%

14%

7%

21%

GabapentinNeurontin8

25%

12%

50%

12%

Ganaxolone1

0%

0%

0%

100%

HemispherectomyRemoval of one half of the brain1

100%

0%

0%

0%

Homeopathy2

0%

0%

0%

100%

IVIGIntravenous immune gamma globulin4

50%

50%

0%

0%

Ketogenic Diet27

48%

7%

26%

19%

LamotrigineLamictal44

39%

11%

23%

27%

LevetiracetamKeppra19

11%

26%

42%

21%

LobectomyRemoval of part of a lobe of the brain1

0%

0%

0%

100%

LorazepamAtivan9

67%

11%

11%

11%

MethsuximideCelontin2

0%

0%

0%

100%

Multi vitamins7

43%

43%

0%

14%

Nitrazepam3

33%

0%

67%

0%

OxcarbazepineTrileptal9

11%

33%

33%

22%

Phenobarbital25

40%

20%

28%

12%

PhenytoinDilantin22

18%

18%

32%

32%

Prednisolone3

0%

33%

33%

33%

Prednisone3

33%

0%

33%

33%

PrimidoneMysoline3

0%

0%

67%

33%

PyridoxineVitamin B69

0%

78%

11%

11%

TopiramateTopamax34

32%

21%

35%

12%

Vagal Nerve StimulatorImplant to stimulate Vagal Nerve14

64%

0%

0%

36%

Valproic AcidDepakene, Epival, Sodium Valproate, Orfi27

37%

0%

30%

33%

VigabatrinSabril17

59%

6%

18%

18%

ZonisamideZonegran16

31%

31%

19%

19%


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Other Links for this diagnosis

Description

LGS Support Group